Patient Resources
Resources That NDPH Patients Have Found Helpful:
Clusterbusters.org
We support research for better treatments and a cure while advocating to improve the lives of those struggling with cluster headaches. Our Purpose is stated in the Bylaws of Incorporation and Mission Statement supports efforts involving the Research, Education, Support and Advocacy related to cluster headache.
CHAMP, Coalition for Headache and Migraine Patients
Our mission is to improve the lives of people with migraine, cluster, and other headache diseases by aligning coalition participants and empowering patient voices.
Association of Migraine Disorders
The Association of Migraine Disorders expands the understanding of migraine disease and its true scope. It includes many medical specialties in the management of this disease. The centerpiece of this effort is a comprehensive online course to accelerate the training of more medical professionals. For patients, AMD shares the opinions of experts in its series of short podcasts. The organization believes that migraine has yet to capture the support of the public; therefore, it hosts Shades for Migraine, a playful, collaborative public awareness campaign. AMD strives to connect and grow an integrated migraine research community.
American Migraine Foundation
Our mission is to mobilize a community for patient support and advocacy, as well as drive and support impactful research that translates into advances for patients with migraine and other disabling diseases that cause severe head pain.
Miles for Migraine
Miles for Migraine reduces the burden of isolation and stigma for people with migraine disease, headache disease and their caregivers. It creates community at fun walk/run events, educational programs and support groups.
Migraine World Summit
Migraine World Summit is the largest virtual patient event in the world for those with chronic headache and migraine disease. Its mission is to reduce the global burden of migraine through world-class education.
National Headache Foundation
Founded in 1970, the National Headache Foundation is the oldest and largest foundation for patients with headache. Its mission is “To cure headache, and end its pain and suffering.” Its vision is “A World Without Headache.”
Eleusinia Psilo Retreat
Science based mushroom retreat dedicated to providing high quality psilocybin experiences and teaching mushroom cultivation. Learn the skills to make psilocybin part of your wellness routine.
PainScience.com
A useful repository of articles on pain, pain theory, what works, and what doesn’t. For headaches, look particularly at the trigger point section.
Curable
An app and website that provides exercises to alleviate or reduce chronic pain. Includes topics on pain education, meditation, brain training, and writing exercises. Also has a good selection of podcasts.
ndphresearch.org
Designed to raise money and awareness for NDPH. Has a good section on research with successful NDPH treatments.
Ctrl M Health
Suicide Prevention and Crisis Intervention
Global Healthy Living Foundation
The Global Healthy Living Foundation is a 501(c)(3) nonprofit organization whose mission is to improve the quality of life for people with chronic illnesses (such as arthritis, osteoporosis, migraine, psoriasis, asthma, alopecia, inflammatory bowel disease, and cardiovascular disease) by advocating for improved access to health care at the community, state, and federal levels, and amplifying education and awareness efforts within its social media framework. In the earliest days of the COVID-19 pandemic, we created our Patient Support Program, which continues to educate and support people living with chronic disease, answering their questions about how to keep safe and providing the latest guidance as the pandemic continues. GHLF is also a staunch advocate for vaccines.