Welcome to NDPHaware and we’re glad you found your way to our blog. Our vision is for this blog to be an open access tool. We invite patients, doctors, researchers, and other headache community members to participate and share their insights, experiences, tips about living with NDPH, new developments, how you advocate for yourself and others, what things you do to distract yourself, funny stories, or whatever you feel the community would benefit from.
Of course we want to keep things positive and respectful. It’s also up to you how much of your personal information you want to share in your post. We will put links on our FB and Twitter pages to help everyone find their way to your post. Please email us at email@example.com with your blog submission for review.
For a headache type with major challenges of diagnosis and treatment, it takes our community sharing information, supporting each other, and advancing research for us to make collective progress.
Learning More About New Daily Persistent Headache: A Conversation with Alan Kaplan from NDPHaware.org
Talking Head Pain is a podcast that confronts head pain, head on. Brought to you by the Global Healthy Living Foundation and hosted by migraine advocate Joe Coe, this show explores how people living with migraine, cluster headache and other types of intense pain find...
Can Abdominal Vein or Artery Compressions be behind some cases of NDPH?
A mother and her childs journey to find answers. Compressions are common in those with connective tissue disorders like Hypermobility Spectrum and Hypermobile Ehler's Danlos. Many who have these conditions are not diagnosed. If you are bendy and flexible, you may be...
Living with NDPH is Like Driving a Stick Shift
As I was in the middle of a nasty pain spike, I started thinking about what it feels like to have New Daily Persistent Headache (NDPH). I was using my Ketamine spray, which after a few sprays spaced close together can make me extra introspective, and that’s when this...